As part of Huntington’s Disease Awareness week, the Echo has been running a series of documentaries about the illness and how it affects people and their families.
In the last of our documentaries, Echo photographer Anna Lukala speaks to members of the Southend Huntington’s Disease Association about how the illness touched their lives and why they are working tirelessly to support people with the condition and their families.
They discuss the work of the association, which includes creating an allotment for members, and how their meetings provide a place for people to come and relax among friends.

In the printed edition of today’s Echo we look more in depth at the work of the association.

 To find out more about Hungtindon's Disease Association in Essex please click HERE or if you would like to donate to help fund research into the disease, please click HERE

 

 

This week, the Echo is running a series of photofilms recorded and edited by Echo photographer Anna Lukala as part of Huntington’s Disease Awareness Week.
In this interview, Huntington’s Disease sufferer Gary speaks about his diagnosis and how it has affected him and his family.

There will be more information and interviews in the printed edition of the Echo every day this week.

 To find out more about Hungtindon's Disease Association in Essex please click HERE or if you would like to donate to help fund research into the disease, please click HERE

 

 

This week, the Echo is running a series of photofilms recorded and edited by Echo photographer Anna Lukala as part of Huntington’s Disease Awareness Week.
Today, we follow Gary and his wife Carrol as they visit University College London for an appointment with Dr Ed Wild – a leading specialist. They speak about how he is dealing with the illness day to day and how research could provide a cure for future generations.

There will be more information and interviews in the printed edition of the Echo every day this week.

 To find out more about Hungtindon's Disease Association in Essex please click HERE or if you would like to donate to help fund research into the disease, please click HERE

 

 

As part of Huntington’s Disease Awareness Week, the Echo will be showing a series of documentaries recorded and edited by Echo photographer, Anna Lukala.
In this second clip, we talk to Ben and Megan Smith whose dad, Gary, has Huntington’s Disease. They speak about how his illness has affected them and the turmoil they face in deciding whether to be tested for the disease – which they have a 50/50 chance of inheriting.

There will be more information and interviews in the printed edition of the Echo every day this week.

 To find out more about Hungtindon's Disease Association in Essex please click HERE or if you would like to donate to help fund research into the disease, please click HERE

 

 

This week, the Echo is running a series of photofilms recorded and edited by Echo photographer Anna Lukala as part of Huntington’s Disease Awareness Week. Every day, we will show interviews from family members, friends and those with the disease about their battle and their hopes for a cure. Today, we speak to Carrol Smith whose husband, Gary, has Huntington’s Disease.
There will be more information and interviews in the printed edition of the Echo every day this week.

The week, which runs until Friday, June 15, aims to raise awareness and funds for research into the condition.

 To find out more about Hungtindon's Disease Association in Essex please click HERE or if you would like to donate to help fund research into the disease, please click HERE

 

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