She looks fine...but this is what Beth endures

She looks fine...but this is what Beth endures

She looks fine...but this is what Beth endures

First published in News

THE parents of a seriously ill girl have released a bold picture showing how a rare condition affects her on a daily basis.

Roger and Debbie Hambleton took the brave step of posting the picture of their ten-year-old daughter, Beth, online to show although she looks like a healthy child, she is battling illness every day.

Their online post described comments made to the family saying there was nothing wrong with Beth and it was all made up.

The family took inspiration from Crohn’s patient Bethany Townsend, whose picture showing her in a bikini with a colostomy bag went viral earlier this year.

Mr Hambleton, 39, of Helmores, Laindon, said: “She looks like a slightly underweight little girl.

“When she is fully clothed you don’t notice, but the picture is basically to show it’s not normal, she’s not a normal child, this is what she has to put up with.

“When people see her jump in and out of a wheelchair, we get funny looks.

“Kids don’t do anything – it’s just a girl in a wheelchair – but some adults try to diagnose her as theywalk by. One person even walked into a post in Lakeside while looking.

“It winds me up more than it does Beth – she just ignores it all.”

Beth has been diagnosed with a number of conditions including Ehlers-Danlos type six, a very rare form of the connective tissue disorder, and eosinophilic enterocolitis, which is related to a digestive system disorder.

Her conditions are so rare, Beth may feature in a medical journal.

She is fed by a tube directly into her stomach and will never be able to eat, but the family, including Luke, 19, Jake, 17 and Rebecca, 15, try to keep life as normal as possible.

They held a surprise party earlier this month to celebrate Beth being discharged from hospital after 82 days of trying to bring a flare-up in her condition under control.

They are continuing to focus on their fundraising, through their Beth’s Fund Facebook page, to buy equipment.

Basildon Council is also trying to find a home better suited to helping the family care for Beth.

Mr Hambleton said: “It’s a progressive condition – she’ll never be better. When things go wrong, we just hope they sort things out, but we don’t expect them to.

“We’re just trying to get a normal daily routine.”

To find out more or to help, visit facebook.com/beths fund

Comments (13)

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9:16am Mon 1 Sep 14

ddf35 says...

Is there meant to be another photo with this article?

the article doesn't really explain anything more about poor Beth's condition and there's no photo as the article suggests, just the 'normal' one.
Is there meant to be another photo with this article? the article doesn't really explain anything more about poor Beth's condition and there's no photo as the article suggests, just the 'normal' one. ddf35
  • Score: 7

9:24am Mon 1 Sep 14

Happys says...

Yes there is another photo take a look on her page
https://www.facebook
.com/bethsfund?ref=b
ookmarks
Yes there is another photo take a look on her page https://www.facebook .com/bethsfund?ref=b ookmarks Happys
  • Score: 4

9:24am Mon 1 Sep 14

Happys says...

Plus she's fed into her main vein through a Hickman line not into her bowel
Plus she's fed into her main vein through a Hickman line not into her bowel Happys
  • Score: 2

9:38am Mon 1 Sep 14

Happys says...

ddf35 wrote:
Is there meant to be another photo with this article?

the article doesn't really explain anything more about poor Beth's condition and there's no photo as the article suggests, just the 'normal' one.
https://www.facebook
.com/bethsfund?ref=b
ookmarks
Other picture was in main paper but don't know why not on here
Please visit her page it will show you on there
[quote][p][bold]ddf35[/bold] wrote: Is there meant to be another photo with this article? the article doesn't really explain anything more about poor Beth's condition and there's no photo as the article suggests, just the 'normal' one.[/p][/quote]https://www.facebook .com/bethsfund?ref=b ookmarks Other picture was in main paper but don't know why not on here Please visit her page it will show you on there Happys
  • Score: 2

9:45am Mon 1 Sep 14

Happys says...

Plus a massive thank you too the companies that helped Beth's welcome home party more special
Jersey joes
Ab Fab catering
Huff n puff
Mrs Potts cakey
Jo jos party delights
Happy hatters parties
Lawsons coffee &. Sandwich bar
The homemade cake company
Laindon communtity centre
Asda
Sainsburys
Steve weaver DJ
PLUS Sue for arranging the party
Plus a massive thank you too the companies that helped Beth's welcome home party more special Jersey joes Ab Fab catering Huff n puff Mrs Potts cakey Jo jos party delights Happy hatters parties Lawsons coffee &. Sandwich bar The homemade cake company Laindon communtity centre Asda Sainsburys Steve weaver DJ PLUS Sue for arranging the party Happys
  • Score: 5

9:55am Mon 1 Sep 14

Kim Gandy says...

People who post comments questioning Beth's condition are sickos. The sort of people you get on farcebook these days unfortunately are fruitcakes. Tw@tter is the same.

And unfortunately, you get them on here too. Questioning people and things they know b****r all about.

I notice Beth's justgiving page has been removed. But there is this one for donating.. http://www.gofundme.
com/Beths-fund
People who post comments questioning Beth's condition are sickos. The sort of people you get on farcebook these days unfortunately are fruitcakes. Tw@tter is the same. And unfortunately, you get them on here too. Questioning people and things they know b****r all about. I notice Beth's justgiving page has been removed. But there is this one for donating.. http://www.gofundme. com/Beths-fund Kim Gandy
  • Score: 3

10:19am Mon 1 Sep 14

Happys says...

Kim Gandy wrote:
People who post comments questioning Beth's condition are sickos. The sort of people you get on farcebook these days unfortunately are fruitcakes. Tw@tter is the same.

And unfortunately, you get them on here too. Questioning people and things they know b****r all about.

I notice Beth's justgiving page has been removed. But there is this one for donating.. http://www.gofundme.

com/Beths-fund
Yes they are , Beth suffers ever day with pain,sickness,etc but because she looks "normal" but what is normal people just don't see how unwell she is , people that know Beth can see how poorly she gets .
Beth can't wait to go back to school even if it's only for an hr she don't care
We use paypal as well as go fund me
Bethany.hambleton@ho
tmail.com
[quote][p][bold]Kim Gandy[/bold] wrote: People who post comments questioning Beth's condition are sickos. The sort of people you get on farcebook these days unfortunately are fruitcakes. Tw@tter is the same. And unfortunately, you get them on here too. Questioning people and things they know b****r all about. I notice Beth's justgiving page has been removed. But there is this one for donating.. http://www.gofundme. com/Beths-fund[/p][/quote]Yes they are , Beth suffers ever day with pain,sickness,etc but because she looks "normal" but what is normal people just don't see how unwell she is , people that know Beth can see how poorly she gets . Beth can't wait to go back to school even if it's only for an hr she don't care We use paypal as well as go fund me Bethany.hambleton@ho tmail.com Happys
  • Score: 4

10:23am Mon 1 Sep 14

ddf35 says...

who is questioning her illness - i hope you're not referring to me, i was just wondering why there seemed to be an inconsistency in the story, when it specifically mentions a photo showing her condition. & fb is blocked at my work place.
who is questioning her illness - i hope you're not referring to me, i was just wondering why there seemed to be an inconsistency in the story, when it specifically mentions a photo showing her condition. & fb is blocked at my work place. ddf35
  • Score: 3

10:40am Mon 1 Sep 14

Happys says...

ddf35 wrote:
who is questioning her illness - i hope you're not referring to me, i was just wondering why there seemed to be an inconsistency in the story, when it specifically mentions a photo showing her condition. & fb is blocked at my work place.
No not you , it's what is written in paper a few people have made comments etc, the other pic which is in normal paper is one showing what's hidden under her top ie tubes etc I can't upload it to here as won't let me
[quote][p][bold]ddf35[/bold] wrote: who is questioning her illness - i hope you're not referring to me, i was just wondering why there seemed to be an inconsistency in the story, when it specifically mentions a photo showing her condition. & fb is blocked at my work place.[/p][/quote]No not you , it's what is written in paper a few people have made comments etc, the other pic which is in normal paper is one showing what's hidden under her top ie tubes etc I can't upload it to here as won't let me Happys
  • Score: 2

10:44am Mon 1 Sep 14

Happys says...

https://www.facebook
.com/bethsfund/photo
s/a.193577294149548.
1073741831.193093800
864564/3160750252331
07/?type=1&relevant_
count=1
https://www.facebook .com/bethsfund/photo s/a.193577294149548. 1073741831.193093800 864564/3160750252331 07/?type=1&relevant_ count=1 Happys
  • Score: 0

10:54am Mon 1 Sep 14

Kim Gandy says...

Happys wrote:
ddf35 wrote:
who is questioning her illness - i hope you're not referring to me, i was just wondering why there seemed to be an inconsistency in the story, when it specifically mentions a photo showing her condition. & fb is blocked at my work place.
No not you , it's what is written in paper a few people have made comments etc, the other pic which is in normal paper is one showing what's hidden under her top ie tubes etc I can't upload it to here as won't let me
You don't have to justify yourself to the a-holes that question.

I am redistributing the link.

Best of luck xx
[quote][p][bold]Happys[/bold] wrote: [quote][p][bold]ddf35[/bold] wrote: who is questioning her illness - i hope you're not referring to me, i was just wondering why there seemed to be an inconsistency in the story, when it specifically mentions a photo showing her condition. & fb is blocked at my work place.[/p][/quote]No not you , it's what is written in paper a few people have made comments etc, the other pic which is in normal paper is one showing what's hidden under her top ie tubes etc I can't upload it to here as won't let me[/p][/quote]You don't have to justify yourself to the a-holes that question. I am redistributing the link. Best of luck xx Kim Gandy
  • Score: 4

7:54pm Mon 1 Sep 14

heartbeat says...

Kim Gandy wrote:
Happys wrote:
ddf35 wrote:
who is questioning her illness - i hope you're not referring to me, i was just wondering why there seemed to be an inconsistency in the story, when it specifically mentions a photo showing her condition. & fb is blocked at my work place.
No not you , it's what is written in paper a few people have made comments etc, the other pic which is in normal paper is one showing what's hidden under her top ie tubes etc I can't upload it to here as won't let me
You don't have to justify yourself to the a-holes that question.

I am redistributing the link.

Best of luck xx
Completely agree, anyone who feels they have the right to question why someone is in a wheelchair or whatever because they "look" ok is not even worthy of a response. There are countless illnesses and diseases which can make someone feel exhausted and give a lot of pain. Sufferers often put on a brave face and try hard to look "ok" despite the way they are feeling. It's between the doctors and the patient, absolutely none of the questioners' business!
[quote][p][bold]Kim Gandy[/bold] wrote: [quote][p][bold]Happys[/bold] wrote: [quote][p][bold]ddf35[/bold] wrote: who is questioning her illness - i hope you're not referring to me, i was just wondering why there seemed to be an inconsistency in the story, when it specifically mentions a photo showing her condition. & fb is blocked at my work place.[/p][/quote]No not you , it's what is written in paper a few people have made comments etc, the other pic which is in normal paper is one showing what's hidden under her top ie tubes etc I can't upload it to here as won't let me[/p][/quote]You don't have to justify yourself to the a-holes that question. I am redistributing the link. Best of luck xx[/p][/quote]Completely agree, anyone who feels they have the right to question why someone is in a wheelchair or whatever because they "look" ok is not even worthy of a response. There are countless illnesses and diseases which can make someone feel exhausted and give a lot of pain. Sufferers often put on a brave face and try hard to look "ok" despite the way they are feeling. It's between the doctors and the patient, absolutely none of the questioners' business! heartbeat
  • Score: 4

11:42pm Tue 2 Sep 14

Haggie92 says...

If the council stopped giving our homes to people who would rather move every year and give them to people like Beth's family their life would be a lot easier! Plus although Beth looks fab in her photo, u can look at my cousin who suffers from cystic fibrosis and he looks perfectly healthy until he takes his top off and U see al his tubes!
If the council stopped giving our homes to people who would rather move every year and give them to people like Beth's family their life would be a lot easier! Plus although Beth looks fab in her photo, u can look at my cousin who suffers from cystic fibrosis and he looks perfectly healthy until he takes his top off and U see al his tubes! Haggie92
  • Score: 0
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