A SEVEN-YEAR-OLD girl who is just one of 16 in Britain with a rare condition is not being given the correct benefits, her mum claims.

Kerry Fuller’s daughter, who she didn’t want to be named, has a very rare genetic condition called nicolaides-baraitser syndrome.

There are currently less than 100 confirmed cases worldwide.

As well as affecting appearance, the condition causes global development delay, feeding problems and autistic-like behaviours.

Kerry’s daughter needs round-the-clock care.

She was already in receipt of Disability Living Allowance due to her epilepsy, but Kerry, 38, said the new diagnosis of nicolaides-baraitser syndrome means that she should receive the higher rate of the mobility component.

She said: “She has to use a wheelchair because she has no sense of danger and can easily hurt herself so it is safer for her.

“She gets worn out very quickly and can’t walk for long periods as well.

“Trying to get her wheelchair into a bus is really difficult and I can’t drive. It costs me £26 each way into town for a taxi which is a lot of money.

“I don’t want her to have to use a wheelchair - I would much rather her being able to run around with her friends and live a normal life.

“But she can’t and we need more support to enable us to get by.

“What do they want me to do to get the support? Cut her legs off?”

A spokesman from the Department of Work and Pensions said: “Decisions are made following consideration of all the information provided, including evidence from a GP or medical specialist. Anyone unhappy with a decision can appeal.”