SHE suffers from one of the rarest and most extreme stomach disorders known to medics and has spent the majority of the past two years in hospital.
Despite her condition, courageous Daisy Palmerunwrapped her presents alongside her family after doctors allowed her home for Christmas.
Daisy, seven, has a life-threatening condition, which means she cannot eat anything.
She is kept alive through a feeding machine, which she is hooked up to 14 hours a day.
Daisy has been in and out of hospital since being diagnosed with chronic intestinal pseudo obstruction at the age of five.
Since August she has been kept in the Royal London Hospital, in Whitechapel, but doctors said she was fit enough to spend the holidays at home.
Daisy’s mum Tracy, and dad, Damon, both 39, had the responsibility of looking after her at their home in Burrs Close, Langdon Hills.
However, they were thrilled to have their little girl home.
Damon said: “We are overjoyed to have Daisy home for Christmas. It’s not going to be easy, but to have our family all together under one roof is a dream come true.
“She will have to go back to hospital in January for more operations and procedures, but to be able to have even a short amount of time to do things as a family, like watching a film together, is just wonderful”.
Daisy, who has a sister Megan, 12, cannot eat or digest any solids and can only sip water. As an occasional treat, she can suck on an unflavoured ice pop. She suffers joint pains and weak muscle and, in the past, has passed out after suffering painful stomach attacks.
Damon, who works in London, added: “Daisy never complains, she is a happy girl.
“She does miss food sometimes, but she doesn’t let it get to her. Sometimes we will say ‘we’ll go and eat in the other room’, but she will say ‘don’t be silly, stay here, you have to eat!’ “This has been a humbling year with all that has happened to Daisy and we will be cherishing every moment together.
“Although she may look OK, she is a very poorly child. She is only kept alive because of the machine. But the fact we have our little girl at home for Christmas is the best present we could ask for.”
Daisy recently met boyband JLS backstage at the O2 arena, London.
Damon said: “It was organised through a charity as Daisy is such a huge fan of JLS. The guys were amazing to her and really made a fuss of her.”
Because Daisy’s condition is so rare, the NHS does not fund research into finding a cure.
The family are supporters of Port, a charity set up to pay for research into the illness.
To make a donation, visit www.port-charity.org.uk.