THE family of a little girl who suffers from one of the most extreme stomach disorders known to medical science, is to start up a charitable trust in her name.
Daisy Palmer, seven, has a life-threatening condition which means she cannot eat any food and can only sip water.
The brave youngster has to be hooked up to a feeding machine in her bedroom for up to 18 hours a day.
She has been in and out of hospital since being diagnosed with the condition, called chronic intestinal pseudo obstruction, at the age of five.
While her mum, Tracy, and dad, Damon, both 39, have been told a cure in Daisy’s lifetime is extremely unlikely, they are trying to make their daughter as comfortable as possible at home, but need to spend lots of money doing it up.
Damon said: “We need to raise around £100,000. We need an electric bed, a lift, a wet room and basically a whole extension built to cater for Daisy.
“We have had many people wanting to help Daisy. In the past, we have asked them to donate money to Port, a charity set up to fund research into Daisy’s condition.
“However, our friends have persuaded us to start up our own trust fund, as we simply don’t have the money to do this ourselves.”
Daisy, of Burr Close, Langdon Hills, cannot eat or digest any solids. As an occasional treat, she can suck on an unflavoured ice pop.
She suffers joint pains and weak muscle and, in the past, has passed out after suffering painful stomach attacks.
Damon, who works in London, added: “Daisy never complains, she is a happy girl.
“It’s so sad, though, to see her missing out on so much.
“When we have our dinner she has what she calls her dinner, which is a small cup of lightly-flavoured water.
“We would not have been able to set this trust up without the help of our very good friends, Lisa Saunders, Jo Morrison and Nina Hook.
“The support we’ve had for Daisy from friends, family and even complete strangers has restored my faith in humanity.”
Family friends are putting together a website for Daisy – www.daisypalmertrust.co.uk – which should go live in May.
The family also have a Facebook page, which can be seen by visiting www.facebook.com and searching for the “Daisy Palmer Trust”.
The family are planning a series of fundraising events for Daisy over the coming year.