A YOUNG boy living with a rare condition, now has a specially adapted trike – thanks to a children’s charity.

Harley Reynolds, 13, from Great Wakering is partially sighted, non-verbal, and has severe reflux. He also has an extremely rare condition which hasn’t yet been named as he is the only person in the country with it.

Last year his family launched a fundraising appeal to fund the specially adapted trike which will allow them to spend quality outdoors time together.

Now the teenager is smiling and enjoying outings with his family on his adapted trike – which was funded by children’s charity Children Today Charitable Trust.

The rare condition, caused by one chromosome snapping off and joining another, affects the coordination of small muscles in movements and his spine.

Harley’s mum, Lynne, said her little boy’s mental health has been positively impacted since receiving the Tomcat trike.

She said: “It’s really cheered him up. It’s been so lovely just seeing him smiling, laughing and having fun – especially at the moment. It’s made a massive difference.”

Children Today supported Harley with half of the amount, £1,747.50, for his adapted trike and the other half was funded through an online appeal which the charity launched on behalf of the teen.

Mum Lynne added: “He’s always asking whether we can go out on it. He knows where it is so he points at it to say he wants to go out, he gets really excited.

“It’s especially good at the moment because there’s not a lot to do apart from go out on the bike. He gets so many looks when we’re out and about.

“He’s obsessed with girls, typical teenager. So every time a girl looks over he starts laughing and waving at them.”

The youngster also has an upcoming operation, which involves breaking every bone in his foot in a bid to correct his bone structure, and his parents are hopeful that his trike will provide a great distraction for him and will bring him lots of joy.